I am writing to update everyone on Adelyn's situation. Dr Justin got Adelyn in to see the GI doctor tomorrow at 7:45 am at Nationwide Children's Hospital in downtown Columbus.
Dr Justin suggested that Adelyn have a swallow test done to determine if there is anything wrong with her swallowing and since when we had the other test done on her GI system she aspirated. We did not think it was a concern then but just in case it is we have to have it checked. He told me that the GI specialist would most likely then do an esaphagus test in order to see if her esaphagus is in bad shape causing her to have reflux esaphagitis. They do that test as a last resort because they have to put the baby under anesthesia. I have mixed emotions about everything but ultimately I want to find and fix the problem.
Dr Justin was encouraged that from last Thursday when she had lost weight, she had now gained that weight back. He said he was also sure it was not a neurological or brain issue which is a good thing!
Funny story, last night at 2:00 Adelyn came to sleep with us. (Yes, I used to be one of those moms who said she would never do this! Haha my how things change when your baby is so sick!) Anyway, I left our bed at 3:00 because I couldn't sleep, I simply did not have enough room and so I went to sleep in out guest room. Adam said Adelyn woke up several times but he kept his eyes closed and put her paci back in and went back to sleep but at 5:00 she woke up screaming and he kept telling her, "Adelyn mommy went to make a bottle, shell be right back." Well, obviously I never came back because I wasn't making a bottle, I was sleeping in the other room so Adam got up to look for me and make a bottle and he said she took it ok which is rare these days but definitly a good thing! This morning I woke up having 5 hours of uninterupted sleep, the first night in 3 months! Praise Jesus; He knew I needed it bad! I am just so thankful for Adam and all he does for me and Adelyn; He could have come and wake me up but he didn't!
Anyway, please pray for our GI appointment tomorrow at 7:45 am (6:45 am central time.)
Psalm 130:1,2 & 5
Out of the depths, I cry to you, oh Lord; O Lord, hear my voice. Let your ears be attentive to my cry for mercy....I wait for the Lotd, my soul waits, and in His word I put my hope.
21 hours ago